Personal Stories

An ER doctor told me I was experiencing venlafaxine withdrawal, then told me to go home and take care of myself. Unbeknownst to me, I was about to enter pure hell.

Recovery is adapting to how your brain works. You accept how it works, observing what makes it worse or better, and learn to navigate the triggers and symptoms you experience. As you do things differently, these 'corrective experiences' begin to undo the negative beliefs you have internalized.

My guardian decided to seek out “professional” advice about how to diminish my “outbursts.” I was perceived as a problem that needed to be extinguished into a compliant state.

There is little doubt in my mind that many school shooters were in an antidepressant-induced state of psychosis, which is a loss of contact with reality that makes it difficult to distinguish between what is real and what is not real. That's what happened to me. I started taking 60mg of Paxil a day. Three days later, I planned my suicide. Then I planned a murder.

I am here today because I didn't take the psychotropic medication I was prescribed. Because I didn't accept someone else's narrative about MY story. Because I listened to my voices. Because I let them guide me— into the underworld, and back.

This is not how the mental health system should treat "psychotic" people. Mental health providers should treat them with compassion, empathy, respect, love and understanding. With a circle of loving and understanding people surrounding a person in crisis, I have no doubt that most "psychosis" would normalize in time.

Here I was, 15 years old and already in a long-term treatment facility. I was, on paper: crazy! This entire time, all the adults in my life had been speaking for me. I never felt like I was any of the things they said, but I went along with it. What else could I have done? Every time I rebelled, it only confirmed to my mother what she thought of me.

Although I have usually been the one suffering from side effects, with others watching on, the roles were reversed in this incident. Seeing my mother impaired caused me heartache, and I am now rethinking my treatment regimen. Is this stuff good for me for the long term? Is this the only stuff that can help me, or is there an alternative?

Here and now, I am Ativan-free and slowly tapering off Wellbutrin after 25+ years. Unable to work due to the severity of iatrogenic injury, I sometimes think of myself as a healing journeywoman. When the terrain is especially rough, I reflect on the words: "The best revenge is living a happy, healthy life." When circumstances and symptoms permit, I’m doing just that.

I have lost interest in making sense. Insofar as anti-stigma entails a reassertion of my apparently forgotten humanity via the retelling of some personal narrative in which I generalize my unique experiences toward some universal wisdom, I have lost interest in the reduction of stigma. I would much prefer it if you didn’t need me to be comprehensible.

Sometimes I am crazy and sometimes I need help, but that help must not be forced upon me. I need to direct my own care; I need to be listened to. ACT is a method of social control that has more to do with saving money than assisting those in need. Money is saved by turning patients' homes into hospitals.

Eight years after beginning ‘treatment’ for an ‘eating disorder’, I was eating worse than ever. Yet three years after quitting that ‘treatment’, food is a pleasure, not a problem.

I still believe I was Anne Frank in my past life, and nothing is wrong with such a belief. I am no longer Buddha, though, because they crashed my spiritual awakening when it was happening. But I go on. I deserve to be happy. I have a family to think of, I want to contribute to society on some level. I want to live. They won’t crash me. Or so I hope.

The goal of creating a legacy for my mother required that I go beyond managing my symptoms to confronting my OCD at its roots. I had to fundamentally change my understanding of anxiety.

The drugs combined with my desire to know how life worked and what made a human broke down all past social conditioning of my individual self. I realized I was God. So was everyone else and I shared with anyone who would listen, but found no one who could understand or navigate the territory. There was little internet to speak of then and no Google to find others who experienced life as I was, so I voyaged on my own as best I could.

Although it’s taken me a while to acknowledge my right to be in this world, I know that I am not “mentally ill,” but rather have a dynamic spiritual and emotional sensitivity to this world. I am here for a reason, and having to go into the depths of a very dark cave in order to see the light is how I was able to grow and discover that I don't have to take medications for the rest of my life.

Watching my son be subjected to continuous harm by the drugs, how can I pretend that it's okay to maintain this abusive system of care? Who will push for accountability? As a mother, I want to share a meaningful connection with my son. I want to witness him happy, healthy and living the life he chooses.

My doctor insisted that my symptoms could not be associated with withdrawal – they had to be symptoms of an underlying condition. I have since learned from legitimate sources that protracted withdrawal syndrome from benzodiazepines can intensify long before it abates, with some symptoms lasting for years.

Ketamine treatment, which was being hailed as a ‘miracle cure’, backfired so spectacularly that it very nearly cost me my life.

I believe there's no harm in giving meds a try—it worked for me. Just be aware that they can only do so much. The rest of the journey requires some navigation and self-direction.

A year after my twin’s death, I stood in a supermarket and felt my body disintegrating into a thousand pieces. My soul knew it needed the right teacher and helper. Fortunately, I found Open Dialogue. It helped me expose the real childhood trauma, and gradually rebuild my shattered, grief-stricken psyche.

I have grown a lot through my experiences, and would not have made the changes I have made, nor be the person I am today, had my madness not returned a second time. It returned because I did not pay enough attention to the wake-up call the first time around.

Everything was not okay, but how could I possibly explain? That I don’t belong here. That I am a phony, a fraud. That I am damaged beyond repair and unsuitable for this work. I felt it happening again: the pressure building in my chest and the tears burning my throat at the prospect of someone discovering my deepest, darkest secret. The precursor to my entire life falling apart.

The court found me “not guilty by reason of insanity” and sentenced me to a 30-day evaluation at a psych facility. A crisis had been averted, and my life could return to normal... oh, how far from the truth that idea was.

At times I dream about meeting those doctors, and telling them how wrong they were when they told me I would always be a very sick person, needing medication my whole life.